So one of the different things about my disease is that even from the beginning, over five years ago, I have always been asymptomatic. This has allowed me the luxury of being able to compartmentalize and deal as needed. Unfortunately, it probably also has led to bit more apprehension when approaching a week like I have now.
Tomorrow, I have labs and tests to check and see how my body is reacting to the medicine. Those results will post on my Advocate page probably on Friday. I will look at them. I know, just ignore them, but as you know me that’s data (I would epically fail the marshmallow test).
Monday I’ll go in to see my retinal specialist and eye surgeon to check out how the original tumor is doing and if there are any long term effects from changes in eye use (none are expected).
Then next Wednesday is treatment number three. This is the time in the overall protocol where I will now have full (or more) potency medicine running through me all month, so we’ll have to see what that means day to day.
I am keeping active and getting out as much as possible and starting to see family on a limited visit basis as the world re-opens. Hope all are staying healthy and safe.
No Nitty Gritty this time as next week there will be more than enough
Thanks, Chuck. I think of you all the time! Appreciate all of the updates. We miss you and cannot wait to see you again!
Gotta have those data points… check the deltas… hoping things chart as expected!
Hey Chuck!
Time and days are curious measures, aren’t they? Between the two one has the…waiting. The quintessential bottle of tipped bottle of ketchup—anticipation. Of course you remember that commercial, right?
I’ll leave you with the following from Susan Gale.
“Sometimes you don’t realize your own strength until you come face to face with your greatest weakness.”
Take care. Be well
Janet
Stay strong! As I transition back in the office…I miss you the most! My “desk-partner” and partner in crime! Don’t forget your legions of fans that are cheering from the sidelines!! You got this!
Hey big bro! I love you so much! I hate that you have to go through all of this- but I’m here with you in spirit. Just do the next thing, get through the next test, trust your body to be strong enough to handle it and also mount an attack against the cancer. And trust your family and friends to 100% be there for you on the days the body isn’t strong enough or can’t fight anymore.
YOU ARE A CHAMPION!!!!! That’s never gonna change! I love you and we’ll chat soon okay?