Let me start by saying Thank You. This site has allowed me to manage my relationship with this disease by being able to occasionally set it aside from daily concerns. I realize that I could never thank everyone who has sent comments, support, and well wishes through the site. It was not my intent to… Read More »Supersize it!
Next week will start with Labs and an MRI. Those appointments never make for a good day, but a rather necessary one. Results and next infusion on the 5th. If you worked with or by me, you would remember post-its, stagger stacked email printouts and a number of ways I would organize my desk to… Read More »Transferable skills
Had infusion number six yesterday and it seems to be integrating well. Haven’t seen any additional side effects, but today’s walk felt like the day after a big race, all the sore muscles and none of the adrenaline. Met with the doctor ahead of time and talked about progress. Based on the previous scan, we… Read More »What’s a Beddian?
Standard tests and treatment over the next week or so. Infusion number 6 out of 8 in this protocol. Over the last week I’ve had a couple of intersections with cancer from others. It is interesting how each approach is individual. Some are aggressive, some more conservative. Some angry, some are stoic. Some rally their… Read More »Use a Coaster!!
No new medical updates this week, which makes it more of a normal week. All the articles talk about the new normal, the future normal, returning to normalcy, will we ever be normal again. With everything that we are in the midst of, people are working to create special things and moments, all of which… Read More »Nothing Special
So we’ll start with the important stuff. Test results and update was good. CT showed the lesions were stable. Good news, as the expectation is that over the time you are building up the medicine, the cancer is still spreading, so stable is good. Radiologist had some testing suggestions for tracking moving forward (see Nitty… Read More »When you go in for treatment and a tornado breaks out
Haha, a little dramatic with the title, but what’s the use if you can’t have fun. So big week here. Tomorrow will have labs and test to continue monitoring the drug in my body, and CT to see the effects on the metastasized cancer. Those results should take 48-72 hours and we will meet with… Read More »Once more into the fray
With apologies to Mr. Nesmith for paraphrasing his song title, this may be the infusion that kicked in. I’m starting to feel general fatigue, see some little rashes pop up on my arms and carry a low level headache through the day. All of these are expected side effects, and none is unmanageable. If you… Read More »This just may be the one
Those who have participated with me in the Hancock climb know that I am not a fan of heights. Particularly, open heights. When I was a Scout leader we would often go to the large ranger fire towers in the campgrounds. I would climb all the way to the top with the Scouts and then… Read More »Kindness (a little social commentary)
I completed the 4th of 8 infusions Monday, and so far all good. Labs were all normal and this is now when we will have a first look at the impact on the cancer (details in Nitty Gritty). A CT will be scheduled at months end to set a new baseline for the second half… Read More »Halfway
