I received a text a few days ago from a friend which included the joke going around about returning 2021 after being dissatisfied with it during the seven day free trial period. It’s hard to look at what has happened during the start of this year and have any good feelings about the next 12… Read More »Hope
Medical first. Finished my fourth dual infusion on Wednesday. All the labs looked good, so next on the agenda is scans. I will schedule both a CT and an MRI (looking at different things in different parts of my body) for the week of Jan 11, 2021. We will review all those and set the… Read More »For the New Year
My appointment with the retinal specialist went well. All is still stable from my first round with this disease. The intermittent issue I was having with my eye was determined to be a non-issue, but I should watch and revisit if it becomes regular and predictable, neither of which has happened. I always try to… Read More »Timing is everything
Finished the third dual infusion on Wednesday. All went well, everything looked good for the labs, looking forward to number four at the end of the month. Monday, I have a little issue to discuss with my retinal specialist. So a good week all in all. That means that we are a little over a… Read More »Better Horizons
Just a quick post to let everyone know that things are going well. I’m feeling good after we worked out the medicines to balance out my hormone and enzyme levels. Next week will begin a full cycle week with labs on Monday, the third dual infusion on Wednesday, and a visit to my Retinal Specialist… Read More »Rollin’ along
Sorry for the long interval between posts, but this has been a challenging two weeks After my last post, my fatigue and reduced appetite continued to impact my day to day quality of life. Approaching the second infusion we reviewed the preparatory lab tests, and saw some concerning values related to my endocrine system (details… Read More »Just in time for Thanksgiving
I would have posted earlier, but this has been one of the most difficult weeks throughout this entire process. Suffice it to say, if this is indicative of how my body reacts to this additional drug, I am not going to have a happy holiday season. Last week I woke up on Wednesday with nausea… Read More »Heading into the Holidays
Completed my first combined drug therapy infusion on Wednesday. I feel I’m managing it pretty well, but a few of my mild side effects flared up as a little reminder the first night. Nothing bad, but a possible view into the near future. We want to see this type of activity because it indicates that… Read More »Patience or numb?
Tomorrow I begin the new treatment protocol. Labs and tests on Monday, Doctor consult and first combined infusion on Wednesday. This cycle consists of 4 infusions spaced 3 weeks apart, so if all goes well it will end on Dec 30th. Just another of the many reasons to want 2020 to end. Concerns are the… Read More »A new stage
We’ve all spent most of 2020 waiting. Waiting to see the impact of a pandemic, waiting to return to normal life, waiting to properly greet our family and friends, waiting for our kids to come and visit, waiting to get our kids out of the house, waiting for changes in society as a result of… Read More »Anticipation and Ahoy