Polar Bear Swim AmandaEve Slattery Jan 24, 2021 He is confident prowling the harsh tundra Skilled at studying the terrain Adaptive to changing conditions Shrewd to seek and find Protective of those in need Playful with those he loves Curious of the unfamiliar Open to new ways As he dips a toe in the icy… Read More »Polar Bear Swim
I am trying to think how would Chuck want me to do this. He wanted this site to share how he was and then he used it to share who he was. If you are reading this he touched you some way. I have only been able to call a few people to share the… Read More »untitled
I received a text a few days ago from a friend which included the joke going around about returning 2021 after being dissatisfied with it during the seven day free trial period. It’s hard to look at what has happened during the start of this year and have any good feelings about the next 12… Read More »Hope
Medical first. Finished my fourth dual infusion on Wednesday. All the labs looked good, so next on the agenda is scans. I will schedule both a CT and an MRI (looking at different things in different parts of my body) for the week of Jan 11, 2021. We will review all those and set the… Read More »For the New Year
My appointment with the retinal specialist went well. All is still stable from my first round with this disease. The intermittent issue I was having with my eye was determined to be a non-issue, but I should watch and revisit if it becomes regular and predictable, neither of which has happened. I always try to… Read More »Timing is everything
Finished the third dual infusion on Wednesday. All went well, everything looked good for the labs, looking forward to number four at the end of the month. Monday, I have a little issue to discuss with my retinal specialist. So a good week all in all. That means that we are a little over a… Read More »Better Horizons
Just a quick post to let everyone know that things are going well. I’m feeling good after we worked out the medicines to balance out my hormone and enzyme levels. Next week will begin a full cycle week with labs on Monday, the third dual infusion on Wednesday, and a visit to my Retinal Specialist… Read More »Rollin’ along
Sorry for the long interval between posts, but this has been a challenging two weeks After my last post, my fatigue and reduced appetite continued to impact my day to day quality of life. Approaching the second infusion we reviewed the preparatory lab tests, and saw some concerning values related to my endocrine system (details… Read More »Just in time for Thanksgiving
I would have posted earlier, but this has been one of the most difficult weeks throughout this entire process. Suffice it to say, if this is indicative of how my body reacts to this additional drug, I am not going to have a happy holiday season. Last week I woke up on Wednesday with nausea… Read More »Heading into the Holidays
Completed my first combined drug therapy infusion on Wednesday. I feel I’m managing it pretty well, but a few of my mild side effects flared up as a little reminder the first night. Nothing bad, but a possible view into the near future. We want to see this type of activity because it indicates that… Read More »Patience or numb?